We are a ‘whole of patient’ research movement
Who We Are
Patients are central to outcomes and are a crucial part of the evidence that informs our research – we are a ‘whole of patient’ research movement.
Founded by microbiologist, virologist and neuroscientist Prof Gilles Guillemin, PANDIS studies patients through the scientific lense of pathobiome environmental disruptors, to investigate causative agents, correlating factors, cascades and clusters in chronic disease and cancer patients.
PANDIS is a pathogenic environmental research organisation with disease-stream working arms that plug and play into a personalised medicine model housing a biobank; full spectrum of innovative screening technologies; biomarker development and kits; pathogenic environmental apps and cross and multi-disciplinary research teams and projects.
PANDIS was formed as a consortium of scientists, patients, and clinicians, harnessing innovative technologies to co-design a 360 degrees’ overlay of patient and environmental data.
What We Do
Findings from new data sets will enable us to tell a different narrative on chronic diseases than what we have heard before, and help to shed more insight into cause and correlation and validate the patients’ experience.
We aim for our findings to be meaningful and powerful to effect change.
Our findings will provide access to effective treatments; influence policy and help to educate and keep people safe from pathogenic environmental harm in built and natural environments.
To sum up the breadth and depth of what we do, we are an independent pathobiome environmental research organisation, collaborator and facilitator; biobank, databank, product development and personalised medicine model, investigating causative agents, clusters, correlation, and cascades in chronic diseases and cancer.
Working with not for profits on a shared mission
When patients, scientists and researchers across disease groups unite on a shared mission and participate in innovative and focused ways, together we will affect meaningful change on how society views, managed and treats chronic disease.
PANDIS yields adaptive data that becomes meaningful with each patient cohort informing the next. Models such as PANDIS help funders, and policy makers to shift cognitive bias on causative agents in chronic disease, and will help serve their constituents, patients, in a more accurate, compassionate way to reduce the burden of disease in society.
Why was PANDIS developed?
11 million Australians are currently living with a chronic disease, states the Australian Institute of Health and Wellbeing 2013 study. This is an unacceptably high number.
Up until recently, investigating causative agents was like looking for a ‘needle in a haystack’ and deemed too costly and broad to achieve a realistic outcome. However new technologies have emerged over the past five years and radically changed this paradigm.
We can now screen patients for pathogenic microbial causative agents that went previously undetected, and can produce highly detailed findings including new microbial discoveries. Our findings will inform biomarker development, effective treatments matches and direct future research funding for research projects.
The PANDIS model was created to address an unmet need in identification of causative agents in chronic disease, conducted by cross and multi-disciplinary research teams who understand microbial ecologies and complex microbial populations in humans, providing patients with personalised treatment options specific to their pathobiome profiles.
We have designed 360-degrees of data points from natural and built environments, geolocation data and pathobiome profiles in patient cohorts, and then overlay this data with for example, disease type and stage. We are looking for correlation and geographic clusters between environment and disease and overlay different disease types that are connected to a microbial common – where patients of different diseases may have shared causative agents.
A data-led one health approach (environmental, veterinarian and human studies).
Evidence based knowledge and methodologies.
Unapologetic! We are authentic and fact based. We say it how it is and catalysts for change.
Agnostic! We are focused on the science.
Collaborative design principles and an agile, lean-in culture.
Critical thinking and adaptive, participatory inquiry
Patients are central to outcomes.
Fierce compassion! We take appropriate focused action and understand the patients’ journey and inner struggles.
Moral courage to lead through complexity to achieve our purpose.